Stroke Impact Scale (SIS) Overview
The Stroke Impact Scale (SIS) evaluates a patient’s self-perceived impact of stroke on their health and life, focusing on impairments and disabilities;
What is the Stroke Impact Scale?
The Stroke Impact Scale (SIS) is a valuable, patient-centered questionnaire designed to comprehensively assess the impact of stroke on an individual’s life. It moves beyond simply measuring impairments to capture the broader range of disabilities experienced post-stroke, directly from the patient’s perspective.
This self-report measure aims to understand how stroke has affected the patient’s health and daily functioning. It’s not a clinician-administered test, but rather a tool for patients to articulate their experiences. The SIS focuses on impairments and disabilities resulting from the stroke, providing a holistic view of the patient’s recovery journey.
Importantly, the SIS isn’t just about physical limitations; it delves into emotional well-being, cognitive function, and overall quality of life. This comprehensive approach makes it a powerful tool for understanding the multifaceted consequences of stroke and guiding individualized treatment plans.
Purpose of the SIS
The primary purpose of the Stroke Impact Scale (SIS) is to evaluate the extent to which a stroke has impacted a patient’s health and overall life experience. It aims to quantify the self-perceived consequences of stroke, providing a detailed understanding of the challenges faced by individuals post-stroke.
Specifically, the SIS serves to assess both impairments – limitations in bodily functions – and disabilities – difficulties in performing everyday activities. This distinction is crucial for tailoring rehabilitation programs to address specific needs. The questionnaire helps clinicians understand the patient’s perspective, guiding treatment decisions and monitoring progress.
Furthermore, the SIS facilitates comparisons between patients and tracks changes over time, enabling a more objective evaluation of treatment effectiveness. It’s a vital tool for research, allowing for the investigation of stroke recovery patterns and the development of improved interventions. Ultimately, the SIS empowers patients by giving them a voice in their care.

SIS Versions and Development
The Stroke Impact Scale has evolved through several versions, notably the SIS 3.0 and the shorter SIS-16, designed for efficient post-stroke assessment.
SIS Version 3.0: Key Features
Stroke Impact Scale (SIS) Version 3.0 is a comprehensive questionnaire meticulously crafted to assess the multifaceted impact of stroke from the patient’s unique perspective. This version delves into how stroke affects an individual’s overall health and daily life, prioritizing the patient’s self-reported experience;

It’s designed to capture impairments and disabilities stemming from the stroke, offering a holistic view of the challenges faced. The SIS 3.0 utilizes a standardized format, ensuring consistent and reliable data collection across diverse patient populations. A key aspect is its focus on multiple domains, allowing for a detailed understanding of the stroke’s consequences.
The questionnaire’s structure facilitates a thorough evaluation, providing clinicians with valuable insights for personalized treatment planning and monitoring patient progress. It’s a crucial tool for understanding the lived experience of stroke survivors and tailoring interventions to meet their specific needs.
Development of the SIS-16
The SIS-16 was developed as a concise instrument to efficiently assess physical function in stroke patients approximately one to three months post-stroke. This shorter version leverages items specifically from the composite physical domain of the comprehensive Stroke Impact Scale (SIS) version 3.0, aiming for practicality without sacrificing crucial information.
A primary objective in its creation was to compare the SIS-16’s performance against a widely used disability measure, the Barthel Index (BI). Researchers sought to determine which instrument better distinguished varying levels of disability among stroke survivors. This comparative analysis aimed to validate the SIS-16’s utility in clinical settings.
The development process prioritized maintaining the reliability and validity of the original SIS while streamlining the assessment process. The SIS-16 offers a valuable alternative for situations where a quicker evaluation of physical function is needed, complementing the more detailed SIS 3.0.

Domains Assessed by the SIS
The SIS comprehensively assesses three key domains: physical function, emotional function, and memory/thinking abilities, providing a holistic view of stroke impact.
Physical Function Domain
The Physical Function Domain of the Stroke Impact Scale (SIS) is a crucial component, designed to evaluate a patient’s abilities in performing everyday physical tasks post-stroke. This domain delves into aspects like mobility, dexterity, and overall physical independence. It assesses how stroke has impacted a person’s capacity to engage in activities of daily living (ADL) and instrumental activities of daily living (I-ADL).
Specifically, the SIS examines difficulties with walking, transferring, and performing fine motor skills. The assessment aims to quantify the extent to which stroke-related physical impairments hinder a patient’s participation in essential life activities. This detailed evaluation provides valuable insights for rehabilitation planning and monitoring progress over time. The development of the SIS-16 specifically focused on items from this composite physical domain, highlighting its importance in assessing disability.
Emotional Function Domain
The Emotional Function Domain within the Stroke Impact Scale (SIS) is dedicated to understanding the psychological and emotional consequences experienced by individuals following a stroke. This domain recognizes that stroke’s impact extends beyond physical limitations, significantly affecting a person’s emotional well-being and quality of life.
It assesses feelings of sadness, anxiety, frustration, and emotional lability – common experiences post-stroke. The SIS aims to quantify the degree to which these emotional challenges interfere with daily functioning and overall recovery. Evaluating emotional status is vital, as it directly influences motivation, participation in rehabilitation, and long-term adjustment. A comprehensive assessment, including this domain, allows healthcare professionals to provide holistic care addressing both the physical and emotional needs of stroke survivors, ultimately improving outcomes and support;
Memory and Thinking Domain
The Memory and Thinking Domain of the Stroke Impact Scale (SIS) focuses on cognitive changes frequently observed after a stroke. This domain assesses difficulties with memory, attention, problem-solving, and overall cognitive processing speed. Stroke can disrupt brain function, leading to impairments in these areas, significantly impacting daily activities and independence.
The SIS evaluates how these cognitive deficits affect a person’s ability to perform tasks requiring mental effort, such as remembering appointments, following conversations, or managing finances. Understanding the extent of cognitive impairment is crucial for tailoring rehabilitation strategies and providing appropriate support. Accurate assessment within this domain helps healthcare professionals develop individualized plans to maximize cognitive recovery and enhance the patient’s ability to participate fully in life, promoting a better quality of life post-stroke.

Scoring and Interpretation
SIS Index calculation involves summing dimensions, standardizing scores to a 0-100 scale, and utilizing the SF-SIS Index for comprehensive evaluation.
Calculating the SIS Index
The SIS Index is derived through a two-step process, ensuring a standardized measure of stroke impact. Initially, the scores from all eight dimensions of the Stroke Impact Scale (SIS) are summed together. This total score then undergoes standardization, transforming it onto a scale ranging from 0 to 100.
This standardization process allows for easier interpretation and comparison of scores across individuals. A higher SIS Index score indicates a greater impact of the stroke on the patient’s life, reflecting more significant impairments and disabilities. Conversely, a lower score suggests a lesser impact. The resulting index provides a concise, overall assessment of the patient’s functional status post-stroke, facilitating clinical decision-making and tracking of rehabilitation progress.
This method offers a robust and reliable way to quantify the subjective experience of living with the consequences of a stroke.
SF-SIS Index Calculation
The SF-SIS Index, a shortened version of the full SIS Index, is calculated by summing the scores from the eight items comprising the Short Form of the Stroke Impact Scale (SF-SIS). Similar to the SIS Index, this summed score is then standardized to a 0-100 scale, providing a comparable metric for assessing stroke impact.
This streamlined approach offers a quicker assessment option without sacrificing substantial reliability. The standardization process ensures that scores are easily interpretable, with higher values indicating a greater impact of the stroke on the patient’s daily life. The SF-SIS Index serves as a valuable tool for efficient monitoring of patient progress and evaluating the effectiveness of interventions.
It provides a concise overview of functional status, complementing the more detailed insights offered by the full SIS.
Standardization of Scores (0-100 Scale)
Standardizing SIS scores to a 0-100 scale is a crucial step in interpreting results and facilitating comparisons. Both the SIS Index (sum of all eight dimensions) and the SF-SIS Index (sum of the eight items of the Short Form) undergo this transformation.
This process involves calculating the patient’s raw score, then applying a formula to convert it into a standardized score ranging from 0 to 100. A score of 0 indicates no impact from the stroke, while 100 represents the maximum possible impact. This standardization allows clinicians to easily understand the severity of a patient’s disability and track changes over time.
The 0-100 scale enhances communication and provides a common framework for evaluating stroke recovery across different individuals and settings.

Reliability and Validity
The SIS demonstrates strong reliability, with Cronbach’s alpha exceeding 0.70 across domains and high test-retest reliability using Spearman’s rho correlation.
Internal Consistency Reliability (Cronbach’s Alpha)

Internal consistency reliability, assessed using Cronbach’s alpha, is a crucial indicator of a scale’s reliability, reflecting how closely related different items within a domain are. For the Stroke Impact Scale (SIS) 3.0, analyses revealed consistently high internal consistency across all assessed domains. Specifically, each domain demonstrated a Cronbach’s alpha coefficient exceeding the generally accepted threshold of 0.70, signifying good internal consistency.
This indicates that items within each domain reliably measure the same underlying construct. It’s important to note that the stroke recovery domain, comprised of only a single item, was not evaluated for internal consistency using this method, as Cronbach’s alpha requires multiple items for calculation; The robust alpha values across the other domains bolster confidence in the SIS 3.0’s ability to consistently measure the intended constructs related to stroke impact.

Test-Retest Reliability (Spearman’s Rho)
Test-retest reliability evaluates the consistency of a measure over time. For the Stroke Impact Scale (SIS) 3.0, this was determined by examining the correlation of domain scores obtained from two separate assessments administered to the same individuals. The statistical method employed for this assessment was Spearman’s rho, a non-parametric measure suitable for assessing the stability of ordinal data.

Results indicated acceptable test-retest reliability, demonstrating the SIS 3.0’s capacity to yield consistent scores when administered on different occasions; This suggests that fluctuations in scores are more likely attributable to genuine changes in the patient’s condition rather than measurement error. Establishing strong test-retest reliability is vital for ensuring the SIS 3.0 provides dependable and stable assessments of stroke impact over time, supporting its use in longitudinal studies and clinical monitoring.

Applications of the SIS
The SIS is utilized for assessing disability post-stroke and comparing outcomes with established measures like the Barthel Index, aiding comprehensive patient evaluation.
Assessing Disability Post-Stroke
The Stroke Impact Scale (SIS) provides a valuable tool for comprehensively assessing the disability experienced by individuals following a stroke. Unlike some measures focusing solely on physical limitations, the SIS captures a broader spectrum of impairments and their impact on daily life. It delves into how stroke affects a patient’s physical function, emotional well-being, and cognitive abilities, offering a holistic view of their recovery journey.
This detailed assessment is crucial for clinicians to understand the specific challenges each patient faces, enabling the development of tailored rehabilitation plans. By quantifying the impact of stroke from the patient’s perspective – their own point of view – the SIS facilitates more effective communication and shared decision-making. Furthermore, the SIS’s sensitivity to change allows for monitoring progress over time, adjusting interventions as needed to optimize outcomes and improve the patient’s overall quality of life post-stroke.
Comparison with Other Measures (Barthel Index)
The Stroke Impact Scale (SIS) and the Barthel Index (BI) are both frequently used to assess disability post-stroke, yet they differ in their approach. The BI primarily focuses on independence in Activities of Daily Living (ADL), providing a performance-based measure observed by a clinician. Conversely, the SIS is a self-report measure, capturing the patient’s perception of their impairments and resulting disabilities across multiple domains.
Research has explored the ability of the SIS-16 to discriminate disability compared to the BI. While the BI offers a quick assessment of functional independence, the SIS provides a more nuanced understanding of the broader impact of stroke. The SIS delves into emotional and cognitive aspects often missed by the BI, offering a more complete picture of the patient’s lived experience. Utilizing both measures can provide complementary insights, enhancing the accuracy and comprehensiveness of disability assessment.